The “Bachelor in Paradise” star, Megan Marx, has expressed her surprise after learning of her diagnosis with a rare and incapacitating health issue.
The renowned public figure publicly announced via social media that she has been diagnosed with spinocerebellar ataxia (SCA6), an uncommon inherited neurological disorder causing a decline in motor skills over time.
After Marx’s emergence to fame on Ritchie Strahan’s season of “The Bachelor” in 2016, she had some tough news for her fans. However, the optimistic attitude that made people fall in love with her remained alive and well as she reassured them of such.
“Months of waiting for gene test results, I met with the neurologist on Friday,” Marx stated.
“S*** news. Diagnosis. Some tears while Keith took over the conversation.”
“F*** huh! Feeling grateful for my physical body right now, in its present state, before neurological degeneration attempts to take some of me from me.”
“All the yays for lovemaking and skinny dipping and hiking and painting and food-ing and bad dancing and awful conversations at bars.”
“Actually feeling grateful altogether. Many have worse diagnoses. Just some processing to do. Lots of living to do.”
Marx explained that, after seeing a loved one battle with the condition, she put off testing for it.
“I kept putting off testing too – not sure if it’s that beneficial knowing since it can’t be treated … My Pop suffered pretty bad with it (couldn’t swallow properly, walk or talk properly), so hard staring down the lens of that.”
When asked about support by a commenter, she confidently replied: “I’ve joined a facey support group which has been great. I’m more struggling with the fact that there isn’t a whole lot of research on the condition!”
She was appalled by the idea of giving up her smoking habit.
“Ha ha you’re an asshole. Fyi everyone I am a non-smoker!”
SCA6, a rare autosomal dominant disorder caused by genetic alteration in the CACNA1A gene, is estimated to affect 1 out of every 100,000 individuals.
Movement difficulties steadily arise in this condition, beginning with issues of balance and coordination. Tremors, stiff muscles, and impaired arm coordination may come to pass as the illness worsens over time.
Generally, the signs of this condition start to surface around age forty or fifty. Sadly, most individuals require wheelchair assistance by their sixties.