When a doctor won’t listen to the inclinations that a mother has about her child, the mother sometimes takes matters into her own hands.

A young girl was dying just from being in the sun for to long. After years of suffering, doctors were finally able to determine what was wrong. If it wasn’t for the determination of the young girl’s mother, she probably wouldn’t be alive today.

The mother, Andrea Fulkerson, realized that there was something wrong with her daughter when she was only four. Every time the little girl would be outside, such as when they were at a pool, she would start screaming and want to go back inside. She would tell her mother that she was burning.

Andrea spent about five years trying to figure out what might be wrong with her child. Her daughter would tell her mother that she felt like lava was being poured over her skin.

She would also begin to itch. Sometimes, blisters would develop on the girl’s hands. Dr. Luu finally noticed something about the little girl. She did some blood tests and discovered that Andrea’s daughter has EPP.

It’s a genetic condition with no cure. Those who have it often can’t go in the sun or be exposed to fluorescent lights. The girl stays inside most of the day and usually only goes out at night.